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ROS1ders Blog
Articles and Resources for ROS1+ Patients, Families, and Health Professionals.
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![The Importance of Being an Engaged Patient with a Rare Cancer](https://static.wixstatic.com/media/11062b_a4a8ce10cd884a52a42b6518c527525b~mv2.jpg/v1/fill/w_514,h_386,fp_0.50_0.50,q_90,enc_auto/11062b_a4a8ce10cd884a52a42b6518c527525b~mv2.webp)
Amanda Koehler
Aug 15, 20233 min read
![](https://static.wixstatic.com/media/a27aba_8ff96cbb29844d4ba0134065415d7c5b~mv2.jpg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/a27aba_8ff96cbb29844d4ba0134065415d7c5b~mv2.webp)
![Gratitude](https://static.wixstatic.com/media/a27aba_8ff96cbb29844d4ba0134065415d7c5b~mv2.jpg/v1/fill/w_514,h_386,fp_0.50_0.50,q_90,enc_auto/a27aba_8ff96cbb29844d4ba0134065415d7c5b~mv2.webp)
Lisa Goldman
Jan 9, 20221 min read
![](https://static.wixstatic.com/media/bef3b5_7b60aa2c9553451ea633d759fc5d5a85~mv2.jpg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/bef3b5_7b60aa2c9553451ea633d759fc5d5a85~mv2.webp)
![The Importance of Research and Clinical Trials](https://static.wixstatic.com/media/bef3b5_7b60aa2c9553451ea633d759fc5d5a85~mv2.jpg/v1/fill/w_514,h_386,fp_0.50_0.50,q_90,enc_auto/bef3b5_7b60aa2c9553451ea633d759fc5d5a85~mv2.webp)
Carol Brickell
Nov 3, 20214 min read
![Please join us for informal ROS1der MEETUPS!](https://static.wixstatic.com/media/e95de5_4229069e50b944bca53eac70c524be4f~mv2.png/v1/fill/w_514,h_386,fp_0.50_0.50,q_95,enc_auto/e95de5_4229069e50b944bca53eac70c524be4f~mv2.webp)
Janet Freeman-Daily
Nov 5, 20201 min read
![Pulmonary hypertension in ROS1+ patients on TKIs](https://static.wixstatic.com/media/bef3b5_b36f4be114e44dd7a75c9524e2b1877a~mv2.png/v1/fill/w_322,h_217,fp_0.50_0.50,q_95,enc_auto/bef3b5_b36f4be114e44dd7a75c9524e2b1877a~mv2.webp)
Janet Freeman-Daily
Aug 29, 20202 min read
![](https://static.wixstatic.com/media/bef3b5_d9cf41e55975465a83bc789e6b745a76~mv2.jpg/v1/fill/w_235,h_235,fp_0.50_0.50,lg_1,q_30,blur_30,enc_auto/bef3b5_d9cf41e55975465a83bc789e6b745a76~mv2.webp)
![Should we delay scans and appointments?](https://static.wixstatic.com/media/bef3b5_d9cf41e55975465a83bc789e6b745a76~mv2.jpg/v1/fill/w_300,h_168,fp_0.50_0.50,q_90,enc_auto/bef3b5_d9cf41e55975465a83bc789e6b745a76~mv2.webp)
Jeff Wynne
Aug 29, 20201 min read
![Getting back to our next normal](https://static.wixstatic.com/media/e95de5_b0cdc3b37a16462a9dd1a0388b1405af~mv2.png/v1/fill/w_514,h_386,fp_0.50_0.50,q_95,enc_auto/e95de5_b0cdc3b37a16462a9dd1a0388b1405af~mv2.webp)
Jeff Wynne
Aug 29, 20202 min read
![](https://static.wixstatic.com/media/bef3b5_c2b911f302264f15915defdb1cc66c9d~mv2.jpg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/bef3b5_c2b911f302264f15915defdb1cc66c9d~mv2.webp)
![Renee Parker: She's a ROS1der](https://static.wixstatic.com/media/bef3b5_c2b911f302264f15915defdb1cc66c9d~mv2.jpg/v1/fill/w_514,h_386,fp_0.50_0.50,q_90,enc_auto/bef3b5_c2b911f302264f15915defdb1cc66c9d~mv2.webp)
Renee Parker
Jun 26, 20205 min read
![](https://static.wixstatic.com/media/bef3b5_65114fa4192f4cefa917b2e698ff40ab~mv2.jpg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/bef3b5_65114fa4192f4cefa917b2e698ff40ab~mv2.webp)
![Joanne Kiers: She's a 1der](https://static.wixstatic.com/media/bef3b5_65114fa4192f4cefa917b2e698ff40ab~mv2.jpg/v1/fill/w_514,h_386,fp_0.50_0.50,q_90,enc_auto/bef3b5_65114fa4192f4cefa917b2e698ff40ab~mv2.webp)
Joanne Kiers
Mar 6, 20202 min read
![](https://static.wixstatic.com/media/bef3b5_94d6d258bf53448fa0d96262a2ec22d3~mv2.jpg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/bef3b5_94d6d258bf53448fa0d96262a2ec22d3~mv2.webp)
![AJ Patel: He's a 1der](https://static.wixstatic.com/media/bef3b5_94d6d258bf53448fa0d96262a2ec22d3~mv2.jpg/v1/fill/w_476,h_386,fp_0.50_0.50,q_90,enc_auto/bef3b5_94d6d258bf53448fa0d96262a2ec22d3~mv2.webp)
AJ Patel
Feb 6, 20203 min read
![](https://static.wixstatic.com/media/bef3b5_c22f9aa2cafa4b7880156ac34c144010~mv2.jpg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/bef3b5_c22f9aa2cafa4b7880156ac34c144010~mv2.webp)
![Calling all ROS1ders! Please help Australians access Entrectinib](https://static.wixstatic.com/media/bef3b5_c22f9aa2cafa4b7880156ac34c144010~mv2.jpg/v1/fill/w_514,h_386,fp_0.50_0.50,q_90,enc_auto/bef3b5_c22f9aa2cafa4b7880156ac34c144010~mv2.webp)
Lillian Leigh
Jan 23, 20202 min read
![](https://static.wixstatic.com/media/e95de5_4605af43e7594d7b93bbe50b3f50e14a~mv2.jpg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/e95de5_4605af43e7594d7b93bbe50b3f50e14a~mv2.webp)
![Parenting after a ROS1+ Cancer Diagnosis](https://static.wixstatic.com/media/e95de5_4605af43e7594d7b93bbe50b3f50e14a~mv2.jpg/v1/fill/w_514,h_386,fp_0.50_0.50,q_90,enc_auto/e95de5_4605af43e7594d7b93bbe50b3f50e14a~mv2.webp)
Lisa Goldman
Dec 29, 20193 min read
![](https://static.wixstatic.com/media/e95de5_cd735109a440482c9d362f3baf381659~mv2.jpg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/e95de5_cd735109a440482c9d362f3baf381659~mv2.webp)
![Travel Tips](https://static.wixstatic.com/media/e95de5_cd735109a440482c9d362f3baf381659~mv2.jpg/v1/fill/w_514,h_386,fp_0.50_0.50,q_90,enc_auto/e95de5_cd735109a440482c9d362f3baf381659~mv2.webp)
Jeff Wynne
Aug 13, 20192 min read
![The Few…The Proud…The ROS1ders!](https://static.wixstatic.com/media/04e382_7e399030d85f4cba9380ec954878f26f~mv2.png/v1/fill/w_170,h_170,fp_0.50_0.50,q_95,enc_auto/04e382_7e399030d85f4cba9380ec954878f26f~mv2.webp)
Luna Okada
Jul 31, 20193 min read
![](https://static.wixstatic.com/media/11062b_e2b580dab01e420aa08572ba02916d7f~mv2_d_5580_4160_s_4_2.jpg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/11062b_e2b580dab01e420aa08572ba02916d7f~mv2_d_5580_4160_s_4_2.webp)
![ROS1 by the Numbers](https://static.wixstatic.com/media/11062b_e2b580dab01e420aa08572ba02916d7f~mv2_d_5580_4160_s_4_2.jpg/v1/fill/w_514,h_386,fp_0.50_0.50,q_90,enc_auto/11062b_e2b580dab01e420aa08572ba02916d7f~mv2_d_5580_4160_s_4_2.webp)
Jeff Wynne
Apr 17, 20192 min read
![](https://static.wixstatic.com/media/nsplsh_b066e52e98284159b9593ff6b743944a~mv2.jpg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/nsplsh_b066e52e98284159b9593ff6b743944a~mv2.webp)
![Thinking about a “drug vacation” from crizotinib? Read this first!](https://static.wixstatic.com/media/nsplsh_b066e52e98284159b9593ff6b743944a~mv2.jpg/v1/fill/w_514,h_386,fp_0.50_0.50,q_90,enc_auto/nsplsh_b066e52e98284159b9593ff6b743944a~mv2.webp)
Janet Freeman-Daily
Jan 16, 20193 min read
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