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ROS1ders Blog

Articles and Resources for ROS1+ Patients, Families, and Health Professionals.

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The Importance of Being an Engaged Patient with a Rare Cancer

Aug 15, 20233 min read

The Importance of Being an Engaged Patient with a Rare Cancer

Gratitude

Jan 9, 20221 min read

Gratitude

What, Me Worry? ROS1 patients find calm by managing stressors specific to ROS1 cancer

Nov 10, 20214 min read

What, Me Worry? ROS1 patients find calm by managing stressors specific to ROS1 cancer

The Importance of Research and Clinical Trials

Nov 3, 20214 min read

The Importance of Research and Clinical Trials

Please join us for informal ROS1der MEETUPS!

Janet Freeman-Daily

Nov 5, 20201 min read

Please join us for informal ROS1der MEETUPS!

Pulmonary hypertension in ROS1+ patients on TKIs

Janet Freeman-Daily

Aug 29, 20202 min read

Pulmonary hypertension in ROS1+ patients on TKIs

Should we delay scans and appointments?

Aug 29, 20201 min read

Should we delay scans and appointments?

Getting back to our next normal

Aug 29, 20202 min read

Getting back to our next normal

Renee Parker: She's a ROS1der

Jun 26, 20205 min read

Renee Parker: She's a ROS1der

Joanne Kiers: She's a 1der

Mar 6, 20202 min read

Joanne Kiers: She's a 1der

AJ Patel: He's a 1der

Feb 6, 20203 min read

AJ Patel: He's a 1der

Calling all ROS1ders! Please help Australians access Entrectinib

Jan 23, 20202 min read

Calling all ROS1ders! Please help Australians access Entrectinib

ROS1DERS: You can help Canadian ROS1+ NSCLC patients gain access to entrectinib!

Janet Freeman-Daily

Jan 5, 20201 min read

ROS1DERS: You can help Canadian ROS1+ NSCLC patients gain access to entrectinib!

Parenting after a ROS1+ Cancer Diagnosis

Dec 29, 20193 min read

Parenting after a ROS1+ Cancer Diagnosis

Travel Tips

Aug 13, 20192 min read

Travel Tips

The Few…The Proud…The ROS1ders!

Jul 31, 20193 min read

The Few…The Proud…The ROS1ders!

ROS1 by the Numbers

Apr 17, 20192 min read

ROS1 by the Numbers

Thinking about a “drug vacation” from crizotinib? Read this first!

Janet Freeman-Daily

Jan 16, 20193 min read

Thinking about a “drug vacation” from crizotinib? Read this first!

Patients’ Tips on How to Deal with Common Side Effects of Crizotinib (aka Xalkori)

Jan 4, 20174 min read

Patients’ Tips on How to Deal with Common Side Effects of Crizotinib (aka Xalkori)

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